The Jackson Branch is now open.

 

Resources for Caregivers of Individuals with Autism

The coronavirus has had drastic effects upon people with autism and their caregivers. The disruption in routines, as well as the introduction of new societal norms such as wearing masks and practicing social distancing, is extremely difficult for individuals with ASD. In addition, many caregivers have found themselves thrust into the roles of their children’s teacher and therapists – experiences that present their own challenges. Listed below are resources that are designed to assist both the individual with autism and his or her caregivers. These resources are divided into five sections:

  1. Information geared toward the pandemic.
  2. Links to the websites of local and state autism-related organizations.
  3. Autism-Related Facebook Groups.
  4. A list of “The Best Autism Apps” (published in Autism Parenting Magazine in May 2020).
  5. Titles of autism-related ebooks that can be borrowed though the Library’s hoopla app.

Have questions about hoopla? Go to → hoopla instructions.

Part 1: Guides for Coping with the Pandemic and Resources for Homeschooling
  • Autism NJ
    • Provides guidance on assisting individuals with wearing masks, adjusting to the disruption in their routines, coping with regression and challenging behaviors, homeschooling resources, and useful apps. Also contains strategies for caregiver self-care, financial concerns, and practical information regarding COVID-19 and its effects on the delivery of therapies. Autism NJ also has a hotline: 1-800-428-8476.
  • Harvard Health Publishing: Harvard Medical School
    • An article containing tips for helping those with ASD cope with taking a COVID test and adjust to wearing masks.
  • The Boggs Center on Developmental Disabilities
    • A social story about wearing masks for adults with developmental disabilities.
  • Education Law Center
    • Contains information about the rights of students with disabilities while schools are closed.
  • New Jersey Autism Warriors
    • This Facebook group is the online caregiver support group for POAC Autism Services. Learn how other people have coped with the challenges that you are encountering, and provide advice to others
  • Mom2Mom Helpline
    • Provides peer support to mothers of children and adults with special needs. Can also be reached by phone at 1-877-914-6662.
  • The Arc of New Jersey
    • Contains COVID-19 resources for individuals and their caregivers – including plain-language explanations, a list of 75 stay-at-home activities, housing updates, and income support.
  • New Jersey Division of Disability Services
    • Contains an emergency preparedness checklist for people with disabilities.
  • Autism Speaks
    • Has a wide variety of resources geared toward families and toward adults who have autism. There is an Autism Response Team (ART) available to answer questions by phone, email, and live chat (1-888- 288-4762). Also contains tips for discussing COVID-19 with your child, a social story about wearing masks, guidance if your child needs to be hospitalized, behavioral resources, coping with stress, and parental training and support resources.
  • Child Mind Institute’s Autism Center
    • Offers suggestions for talking to your children about the coronavirus, teaching handwashing techniques, developing routines and creating schedules, and writing an emergency plan.
  • Echo Autism
    • Contains information about teaching handwashing to children, how to do ABA, speech, and OT therapy at home, behavior management techniques, how to teach at home (including links to websites on various subjects), and more.
  • Wolf + Friends
    • Available as a free app through the App Store and Google Play, this resource enables you to meet moms in your area who are raising children with special needs. Contains homeschooling resources, free articles, Zoom video chats, and a directory of specialists in particular fields.
  • Education.com
    • Contains free printable worksheets on a wide variety of topics for children in preschool through fifth grade. Also has online games, songs, activities, and stories. Must create a free account to use.
  • SplashLearn
    • Uses fun, online games to teach math to children in grades 1 to 5. A free account is necessary to access some of the resources.
Part 2: Local and State Autism-Related Organizations

Employment Training and Assistance

Allaire Community Farm → Provides PreEmployment Training, Therapy Farm Animals

Community Options → Employment Training for High School Students, Employment, Housing

New Jersey Division of Vocational Rehabilitation Services (One-Stop Career Centers are closed during the pandemic) → Employment Assistance

Water & Sims → Provides Supported Employment Services

 

Information and Referral

Ocean County Department of Human Services (Children’s InterAgency Coordinating Council, Office of Individuals with Disabilities) → Information and Referral, Advocacy, Community Education

Ocean County Health Department → Information and Referral

SPAN Advocacy Network → Information and Referral, Caregiver Support and Resource Center

Toms River Mayor’s Advisory Council on the Americans with Disabilities Act → Advocacy and Assistance

Toms River Mayor’s Advisory Committee on Developmental Disabilities → Advocacy and Assistance

 

Legal Services

Community Health Law Project → Legal and Advocacy Services.

Hinkle Prior & Fischer → Special Education Law, Estate Planning

The Matus Law Group → Special Education Law, Estate Planning

Sussan Greenwald, & Wesler → Special Education Law, Estate Planning

 

Medical Specialists

Children’s Specialized Hospital → Developmental Pediatricians, Neurologists, Psychiatrists

Children’s Wellness & Developmental Center → Developmental Pediatrics, Holistic, and Biomedical Treatments

Community Medical Center → Autism-Friendly ER

Developmental Pediatrics of Central NJ → Developmental Pediatrics

KidZdent → Special Needs Dentistry

The Milestones Center → Developmental-Behavioral Pediatrics

Ocean Pediatric Dental Associates → Special Needs Dentistry

 

Miscellaneous

Canine Companions for Independence → Service Dogs

Encouraging Kids Family Resource Center → After School, Evening, and Weekend Programs for Students with Special Needs. Educational Advocacy.

The Friendship Circle of Central Jersey → Social and Respite Programs

Mosaic Music Therapy → Music Therapy

New Jersey Camp Jaycee → Summer Camp

New Jersey Council on Developmental Disabilities → Public Policy

Ocean County Family Support Organization → Peer Support, Dissemination of Information, and Family Training

POAC Autism Services → Recreational and Support Services, Family Training

Rising Treetops at Oakhurst Summer Camp

We Rock the Spectrum Kid’s Gym → Recreation (Indoor Play)

 

Multiservice Organizations

Easterseals NJ → Summer Camp, Behavioral Health Services, Residential Services, Day Programs, Supported Employment

Ladacin Network → Services for All Ages: School, Therapy, Day Programs, Vocational Therapy, Housing

SERV Behavioral Health Systems → Services for All Ages: In-Home Services, Vocational Training, Residential Services

21 Plus, Inc. → Residential Services, Vocational Services, Supported Employment

 

New Jersey State Services

For behavior therapy and respite for children under the age of 21, contact PerformCare (the New Jersey Children’s System of Care) at www.performcarenj.org or by calling 1-877-652-7624.

To inquire about home and community-based services for individuals 21 and older, contact the New Jersey Division of Developmental Disabilities (DDD) at www.nj.gov/humanservices/ddd/home or by calling 1-800-832-9173.

A “Transition to Adulthood Timeline for Parents,” which begins at age 14, is available on The Boggs Center on Developmental Disabilities’ website. Click here to view this document.

 

Ability Advocates of NJ → Support Coordination for Division of Developmental Disabilities Services

A Bright Tomorrow → Support Coordination for Division of Developmental Disabilities Services

A Care Connection of New Jersey → Support Coordination for Division of Developmental Disabilities Services

Ocean Partnership for Children → Care Management and Service Planning for Children with Behavioral and Emotional Challenges (accessible through PerformCare)

Owen Health Care → Children’s Behavior Therapy through PerformCare, Support Coordination for Division of Developmental Disabilities Services, Respite, Summer Camp, Supported Employment

PrimeTime Center → Adult Day Programs (Life Skills, Recreation, Social Skills, Vocational Skills, and More) (admission through DDD)

SPWA Services → Support Coordination for Division of Developmental Disabilities Services

 

Safety Agency

Ocean County Commission on Child Safety and Awareness → Safety

Ocean County Sheriff’s Office → Safety

 

Schools

To view a comprehensive list of schools, visit Autism NJ’s Directory of Schools Serving Children with Autism Spectrum Disorder.

 

The Alpha School → School for Ages 5 to 21

Children’s Center of Monmouth County → School for Ages 3 to 21

The Gateway School → School for Ages 5 to 21

The Harbor School → School for Ages 5 to 21

Hawkswood School → School for Ages 3 to 21

Ocean County College → Education (Disability Services)

Ocean County College → Summer Camp

The Shore Center for Students with Autism → School for Ages 3 to 21

 

Therapy (ABA, Occupational, Physical, Speech)

Brain Builders → ABA, OT, Speech. New Toms River center offers ABA & Therapy Services under one roof!  Remote learning can also be done at the center, as per individual child's needs and insurance approval.

Brett DiNovi & Associates → ABA Therapy

Caring Family Community Services ABA Therapy

Children’s Specialized Hospital (1-888-244-5373) → Speech, OT, PT, Feeding Therapy

The Family Resource Network → ABA Therapy, Recreational Programs, Information

Graham Behavior Services → ABA Therapy

Hybridge Learning Group → ABA, Speech, OT

Kaleidoscope Family Solutions → ABA Therapy

Limitless Victory Therapy Services → Occupational Therapy

Proud Moments ABA  ABA Therapy

The Puzzle Place Center for Autism → ABA, Speech, OT

Sensory Playground → ABA, Speech, OT, PT

Social Behavior Learning Solutions → ABA Therapy

Speech Language Associates → Speech Therapy

Speech Pathology Solutions, LLC → Speech Therapy

Sunny Days Sunshine Center → ABA, OT, PT, Speech

Unlocked Potential → ABA Therapy

Weisman Children’s Rehabilitation Hospital → Feeding, OT, PT, Speech

Part 3: Autism-Related Facebook Groups

Autism Parent Support & Disscussion Group

Autism Society Southwest New Jersey Affiliate

Central NJ Special Education Parent Leaders Group

New Jersey Autism Warriors

New Jersey Parents of Children with Special Needs

NJ Special Needs Connection

Parent Advisory Group of Toms River Special Education

Parent to Parent NJ

Sensory Ideas for Kids

SPAN Parent Advocacy Network

Part 4: The "Best Autism Apps" According to Autism Parenting Magazine (May 2020)

The apps listed below are free to download, although they may offer in-app purchases.

 

Autism Support Groups

MyAutismTeam (Apple and Android)

→Caregivers can meet other people in similar circumstances, make friends, and get practical tips.

 

Behavioral Intervention Plan

I’m On It: Focus Timer for ADHD & ASD (Android Only)

→Helps individuals stay focused on tasks by allowing the user to set a timer for specific activities.

Autism Early Intervention App (Android Only)

→Works on academics, social skills, and daily routines. Contains visual cues, tactile tracing, and audio information.

 

Education

AutEdu (Autism Education) (Android Only)

→Enables communication between caregivers and teachers.

Otsimo (Apple and Android)

→Teaches letters, numbers, colors, animals, and more. Also provides Alternative and Augmentative Communication (AAC), which is often used in speech therapy.

 

Functional Life Skills

Daniel Tiger for Parents (Apple and Android)

→Helps develop skills such as sharing, potty training, and working through emotions.

Aiko & Egor: Animation 4 Autism (Apple and Android)

→Uses simplified animations and interactive characters to teach. Best watched with caregivers.

 

Games

Infant Zoo LITE for Babies (Apple Only)

→Provides visual input through high quality illustrations, animal sounds, and stimulating bubbles.

Magic Fluids Lite (in App Store) / Magic Fluids Free (in Google Play) (Apple and Android) 

→Promotes calming and relaxation by allowing users to create a dynamic wallpaper. Touch the screen and watch beautiful motions of colorful smoke and water.

 

Health Management

Chronaly: Powered for Autism (Apple and Android)

→Track behavior and health. Share data with teachers and therapists. Also allows you to create a schedule.

Part 5: Autism Resources Available on hoopla

Have questions about hoopla?

Go to → hoopla instructions.

 

Resources for Caregivers

 

  • School Success for Kids With Autism

    By Andrew Egel, Katherine Holman, and Christine Barthold

    By outlining the best practices found in today's classrooms, School Success for Kids With Autism describes how parents and teachers can work together to create nurturing, supportive, and effective classroom environments from preschool to high school. With practical tools and advice from leaders in the field of autism education, this book is sure to give these students, their parents, and their teachers guidance for success.

  • An Early Start for Your Child with Autism: Using Everyday Activities to Help Kids Connect, Communicate, and Learn

    By Geraldine Dawson & Sally Rogers, Audiobook Read by Ann Marie Lee

    This encouraging guide from the developers of a groundbreaking early intervention program provides doable, practical strategies you can use every day. The authors make it surprisingly simple to turn daily routines like breakfast or bath time into fun and rewarding learning experiences that target crucial developmental skills. Vivid examples illustrate proven techniques for promoting play, language, and engagement. Get an early start and give your child the tools to explore and enjoy the world.

  • Coloring Outside Autism’s Lines: 50+ Activities, Adventures, and Celebrations for Families with Children with Autism

    By Susan Walton

    This book is packed with exciting ideas for families living with autism, with everything you need to know to make them a reality. Including: unconventional backyard fun, easy ways to adapt public places into stress-free outings, surprising activities that can lead to lifelong interests, and special activities for grandparents and extended family members, with tips and advice from dozens of creative families who have found fun with autism and want you to do the same!

  • Tic Toc Autism Clock: A Guide to Your 24/7 Plan

    By Elizabeth Obrey & Linda Barboa

    Autism does not sleep. When night falls, families everywhere tuck their children into bed for what will typically be a good night's sleep, but the care required by the child with special needs continues around the clock. Like Grandfather's pocket watch, if not wound consistently, the ticking will stop. Teachers and therapists often provide some services during the day, but the family is the 24/7 team.

  • A Treasure Chest of Behavioral Strategies for Individuals with Autism

    By Beth Fouse & Maria Wheeler

    A cornucopia of ideas, strategies, and concepts that will apply to virtually any situation! The authors address sensory, communication, and physical and social-emotional issues by increasing desired behaviors and decreasing unwanted behaviors. Whatever problems you face, you'll find helpful solutions to them in this book. This book should be on every teacher's and parent's bookshelf.

  • The Parent’s Guide to College for Students on the Autism Spectrum

    By Jane Thierfield Brown, Ed.D.; Lorraine E. Wolf, PhD; Lisa King, MD; and Ruth Kukiela Bork, M.Ed.

    Arranged in the order that students and their family will go through during the college process, each chapter of this book begins with an overview and a vignette of a student and where he or she is in the college process. This parent-friendly book, written by parents who are also autism professionals, takes the fear and mystery out of the college experience in a world that sees an increasing number of individuals with autism spectrum disorders attending college.


Resources for Teens & Adults

 

  • The Autism Job Club: The Neurodiverse Workforce in the New Normal of Employment

    By Michael S. Bernick & Richard Holden

    The Autism Job Club is a groundbreaking book for bringing adults with autism and other neuro-diverse conditions into the work world. The authors review the high unemployment rates among adults with autism and other neuro-diverse condition, and outline and explain six strategies that, taken together, will reshape employment for adults with autism. The Autism Job Club will be a vital resource for adults with autism, their families, and advocates who are committed to neuro-diverse employment, not unemployment.

  • The Autism Playbook for Teens: Imagination-Based Mindfulness Activities to Calm Yourself, Build Independence, and Connect with Others

    By Irene McHenry & Carol Moog

    This book offers a unique, strengths-based approach to help teens with autism spectrum (including Asperger's Syndrome) develop social skills, strengthen communication, and thrive. The activities contained in each chapter are custom-designed to work with the unique perspectives, sensory processing, neurological strengths and challenges that teens with autism bring to their encounters with the social world. This is the only book available for teens with autism that specifically integrates mindfulness skills and imaginative scripted roleplaying activities for building authentic social experiences.

  • The Aspie Teen’s Survival Guide: Candid Advice for Teens, Tweens, and Parents, from a Young Man with Asperger’s Syndrome

    By J.D. Kraus

    The teenage years are a time when being social is the #1 priority for kids. But for kids with Asperger's, who have acute social challenges, these years can be the most difficult, confusing time in their lives. Enter J. D. Kraus, a young man who has been there, done that! He offers practical advice to his peers so they can get the most out of middle school and high school, both academically and socially. Parents and teachers will love seeing life through J.D.'s eyes, plus "Notes to Parents" sections offer great advice for caregivers and educators alike.


Resources for Educators

 

  • Teaching Children with Autism in the General Classroom: Strategies for Effective Inclusion and Instruction in the General Education Classroom

    By Vicky Spencer & Cynthia Simpson

    Teaching Children With Autism in the General Classroom provides an introduction to inclusionary practices that serve children with autism, giving teachers the practical advice they need to ensure each student receives the quality education he or she deserves. Promoting field-tested strategies and techniques, this book offers teachers sound advice for creating a classroom environment conducive to learning success for children with autism spectrum disorders.

  • Social Skills Games & Activities for Kids with Autism

    By Wendy Ashcroft, Ed.D., Angela M. Delloso, and Anne Marie K. Quinn

    This book provides complete instructions for using fun, engaging games and activities to teach social skills to children with Autism Spectrum Disorder. Perfect for teachers struggling to help their students with autism learn to interact socially with their peers, these games are sure to become a much-loved part of students’ daily routines.

  • Teaching Adolescents with Autism: Practical Strategies for the Inclusive Classroom

    By Walter Kaweski

    Award-winning educator Walter Kaweski offers secondary teachers practical strategies and heartfelt insights based on his extensive experience as an autism specialist, inclusion coordinator, and father of a son with Asperger syndrome. Teaching Adolescents with Autism offers hundreds of valuable ideas to help teachers. This unique book takes the mystery out of teaching adolescents with autism and inspires teachers to appreciate the individuality of each student.

  • Educating Young Children with Autism Spectrum Disorders: A Guide for Teachers, Counselors, and Psychologists

    By Erin E. Barton & Beth Harn

    Educating Young Children with Autism Spectrum Disorders is aimed at providing strategies for teachers, school counselors, and psychologists to help address the needs of children on the spectrum, as well as their families. Including forms, charts, and a range of classroom activities, this is a great resource you will need 23 to gain the insight and tools for making a difference in the educational lives of young children with autism.

  • Managing the Cycle of Meltdowns for Students with Autism Spectrum Disorder

    By Geoff Colvin & Martin R. Sheehan

    This practitioner-friendly guide provides special and general education teachers of autistic students with a six-phase positive behavior support model that includes interventions for each phase. This book outlines practical steps for preventing and responding to the various phases of meltdown behavior in students with autism spectrum disorder. Teachers will find experienced guidance for providing a supportive environment in which students with ASD can succeed.

  • Ten Things Your Student with Autism Wishes You Knew

    By Ellen Notbohm & Veronica Zysk

    For the teacher in all of us comes Ten Things Your Student with Autism Wishes You Knew. The unique perspective of a child's voice helps us understand the thinking patterns that guide their actions, shape an environment conducive to their learning style, and communicate with them in meaningful ways. This book affirms that autism imposes no inherent upper limits on achievement, that both teacher and child "can do it."

  • Practical Solutions for Stabilizing Students with Classic Autism to be Ready to Learn: Getting to Go!

    By Judy Endow, MSW

    This user-friendly book presents evidence-based, easy-to-use strategies within two major areas of stabilization found critical for students on the autism spectrum: sensory regulation and use of visual supports. With proper use of these strategies, the student with classic autism can get to GO! – feeling regulated and supported and, therefore, ready to learn and participate.

 

The information provided in this document is intended for your general knowledge only and is not a substitute for professional medical, legal, or financial advice, or treatment for specific medical conditions.

 

Click here for a downloadable PDF version of this information.